What to Do If You Suspect Your Child Has Autism: Your First Steps Towards Clarity and Support

Written By Cori Fabian

Suspecting your child might be on the autism spectrum can be an emotional rollercoaster. Confusion, concern, a yearning for understanding, and even a natural apprehension about the unknown are all valid feelings. Remember, taking these first proactive steps is a testament to your incredible love and commitment to your child's well-being.

This guide will help you navigate this initial phase, providing clear actions and ultimately pointing you towards comprehensive, expert support like that offered by Fabian House.

Step 1: Observe, Document, and Trust Your Gut.

  • Keep a Detailed Journal: Start noting specific behaviors, interactions, and communication patterns that raise your concerns. When did you first notice them? How often do they occur? What happens before or after? The more detailed your observations, the more helpful they will be.

  • Capture Moments (Discreetly): If comfortable, short video clips of these behaviors can sometimes offer a clearer picture for professionals to review.

  • Your Intuition Matters: As a parent, you know your child best. Trust your instincts if something feels "off" or different.

Step 2: Connect with Your Pediatrician (Your Initial Point of Contact).

  • Share Your Observations and Concerns: Don't hesitate to clearly articulate what you've noticed and why you're concerned. Your child's doctor is a crucial first ally.

  • Request Developmental Screenings: Your pediatrician can conduct or refer you for standard developmental screenings. These quick checks help determine if your child is meeting typical developmental milestones.

  • Rule Out Other Possibilities: Discuss any concerns about hearing or vision, as sometimes these can impact communication and social interaction. Your pediatrician can refer for further testing if needed.

Step 3: Seek a Professional Evaluation (The Path to a Clear Understanding).

  • Request a Referral for a Comprehensive Autism Evaluation: If your pediatrician shares your concerns, or even if you simply desire a more in-depth assessment, insist on a referral to specialists for an autism evaluation. This is the definitive step towards a formal diagnosis.

  • Utah Resources for Evaluators: For families in Utah, finding qualified evaluators is key. Here are some trusted resources:

  • Prepare for the Evaluation: Gather all your documented observations, any relevant medical history, and school reports (if applicable) to provide to the evaluation team.

Step 4: Understand the Power of Early Support and Expertise.

  • Early Intervention is Key: Regardless of a formal diagnosis (which can sometimes take time), recognizing developmental differences early allows for immediate support. The sooner interventions begin, the more profound their impact can be on a child's development.

  • Why Expertise Matters: Addressing the unique needs of a child with suspected autism requires specialized knowledge and proven methodologies. This is where programs rooted in evidence-based practices, like Applied Behavior Analysis (ABA), become invaluable.

Step 5: Embrace Your Emotions and Seek Support for Yourself.

  • Your Feelings Are Valid: This journey can be emotionally taxing. Allow yourself to feel whatever comes up – sadness, worry, frustration, or even hope.

  • Connect with Your Support Network: Lean on trusted family and friends. Consider joining local parent support groups, as connecting with others who understand can be incredibly validating. The Autism Council of Utah is an excellent resource for support groups and services: https://www.autismcouncilofutah.org/.

  • Prioritize Self-Care: You are your child's best advocate. Make time for activities that help you recharge and maintain your well-being.

Step 6: Let Fabian House Be Your Ally in the Search for Truth. Even before a formal diagnosis, if you suspect your child has autism, Fabian House in Lehi, Utah, can be an invaluable partner. While we are experts in providing comprehensive, integrated education and ABA therapy post-diagnosis, we also understand the critical period of observation and evaluation. We are committed to supporting families through every stage.

  • We Understand the Journey: Our team has extensive experience working with children who show developmental differences. We can discuss your observations and offer insights into next steps.

  • Prepare for What's Next: Even while awaiting a formal diagnosis, understanding what a high-quality, integrated program looks like can help you prepare for the future.

  • An Expert Resource: Consider us an ally in your search for answers. We're here to offer information and guidance on the path ahead, including what comprehensive support looks like once a diagnosis is confirmed.

Cori Fabian
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